Just One Foot
Sunday, March 22, 2026
Thankful For What It's Not
Saturday, March 21, 2026
Starting Again
I've thought about returning to this page so many times. It's hard to believe it's been ten years since my last post. Ten years of drastic life changes. Ten years that have turned our family upside down. But we are still here, better than ever. Always moving forward.
Ten years ago I could not have imagined this silly boy in the Bluey glasses. He's my four year old grandson, who has lived three houses down from me from the time he was six weeks old. And spent almost every work day with me since then too. He's my right hand man. A blessing I never saw coming.
More on where our family has ended up in later posts. So much to write on that topic. But the reason for this post is different.
I'm facing yet another major medical challenge and this one has side tracked me.
If you dont know my story, I electively had my left leg cut off in 2004. One of the first elective amputees that I know of. Fortunately for many, it's becoming more common, and giving new mobility to people who were losing hope. I learned to finally ski on the first anniversary of my surgery. I loved going to the gym. I traveled on adventures with my husband and our four kids, as we moved around the country for his job. Life clipped on, for many years.
We landed in CO. Our perfect state. We loved almost everything about it. But a few years ago my body started falling apart again. I started noticing my right foot deteriorating badly. Repeated infections. Repeated hospitalizations. A round of sepsis, sent home on IV through a port in my chest. Then my foot just fell apart. I think the pictures are too graphic to share online.
I had to make the decision. A familiar one. Spend the rest of my days in and out of hospitals, on crutches, risking more sepsis, or just getting rid of it. It wasn't a hard choice. I wanted to live.
So in 2023 I had my second leg amputated below the knee. As you can imagine, having two missing legs is a bit more complicated than having one, especially after being mostly bed ridden with infection for a few months. I had to slowly start to learn a new life, that now included a wheelchair.
A few months after that huge change I had a serious spell involving my gallbladder, that put me in the ICU with sepsis once again. It just seemed to be one medical event after another.
Once all of that settled down I felt I had to address a medical concern that had been haunting me for over 15 years. My thyroid. It had been growing and growing, showing no signs of cancer, for many years. It was finally making my voice gravelly and making me choke, so it was time to come out.
Of course my ENT said it was the biggest one he'd ever seen. That's me. The one in a million. He had to include a thoracic surgeon in the surgery in case they had to break my sternum to get it out. Fortunately they didn't, but it came with complications I never dreamed possible.
My thyroid had invaded my vocal cords so much that after my surgery they were paralyzed. They ARE paralyzed. It's now 9 months past my surgery and since that day, on July 10, 2025, I have had no voice and severe shortness of breath. You cant imagine how much this affects your life.
First of all, my learning to walk had to stop. I get winded just wheeling to the bathroom. Not using my leg muscles is making them wither away. I refuse to be confined to a wheelchair the rest of my life when I have muscles I could be using.
Second of all, I lost so many precious interactions with my sweet grandson. He is four. He is a chatterbox. He's soaking in ABCs and nursery rhymes and books being read to him. All things I cannot do. We missed a whole season of singing Christmas songs he loved so much last year. I have stacks of fun books I want to share with him while he'll still let me. Every day is flying by as he grows older.
I miss my long discussions about life, and kids, and memories, with my husband. We didnt get to 36 years of marriage without some pretty deep discussions, and I miss them. So many thoughts I want to share that are stuck in my brain.
I thoroughly enjoyed sharing my legs with people in public. Especially children. I used to go into schools and Boy Scout troops and share my leg with them. Being in a wheelchair for a couple of years put me at their eye level so in the stores I wanted to strike up conversations with them, to make them realize my bionic legs were cool. But the little 'voice' I have is whispery, and scary. I dont want to scare them more.
And last but not least, I cannot make phone calls or use drive thrus. Not a five minute phone call to make a doctors appointment, or to check on a bill. I have to rely on Jeff to do all the calls, around his already chaotic work schedule.
So at the last visit to my ENT, he mentioned the next step might be a tracheostomy. Yeah. A hole in my throat. To open up my airway and allow me to breathe more easily, and talk again.
I never in my wildest dreams thought I would ever be considering living with a hole in my throat. Somehow having both legs cut off didnt really alarm me, but having a hole in my throat felt like a punch in the stomach.
I was very against it at first. And I really couldnt figure out why. After some soul searching, and discussions with Jeff, I realized part of it. I am comfortable entering a room with artificial legs. People understand it. 'Oh, she has legs amputated'. In fact, I sense I get points for it, since most of the ways you lose legs are pretty scary, and I seem to have overcome it.
But you enter a room with a hole in your neck and it's confusing. It's creepy to many. I grew up in an age of non-smoking campaigns where people smoked cigarettes out of their hole, and talked like robots. People are going to assume I did this to myself, when I've never smoked a day in my life.
I was afraid of finally being a medical freak.
Then last week Jeff and I drove to MO to check on my dad. I was surprised how much better I felt. With the lower elevation and the warmer moist air, I had a bit more energy, more projection of my little voice, and not as much windedness. It was a peek into 'better'.
As soon as we got home I came down with the family cold, with lots of mucous, which is terrible for my condition. I could barely get to the bathroom several times a day without becoming severely winded. Remember, every trip out of bed meant putting on two prosthetic legs and getting into my wheelchair. I was on my supplemental bedside oxygen almost full time and my oxygen levels still wanted to hit the mid 80s (they are supposed to be above 95).
I felt like a true invalid. And it made me MAD.
While in bed I had been doing deep dives into what life with a trach really looked like. Not the kind hooked to a ventilator. Just a trach. It's not as well understood.
But I found many videos, on TikTok and YouTube, about what everyday life looked like, from young people. In their 20s, just living their lives with it, talking normally, breathing normally, and sharing their stories for people like me.
Just like for so many years I've shared my stories about how living with prosthetic legs isnt so bad. Ironic. I'm the one who needs the help now.
I realized that it's time to move on. To do what I've always done. Do the next thing to get the life I want. Many years ago I wrote a book about my elective amputation. It's all about doing what it takes to get the life you want. Why cant I take my own advice?
Maybe this is part of my purpose on this planet. My life motto, after I deconstructed from the Baptist Church, has been "We're all just here to help each other". And I really believe that. And maybe by getting this surgery, and getting my life back, I can help someone else, once again.
Now that the cold in subsiding, and I have the energy to be at the laptop again, I wanted to get all of this out. To start this journey. I hope to remain faithful, to document this process. The days up to surgery. The days after, the days of finding my voice again. I might have to add to my TikTok videos, for voice samples. I have a couple of videos on TT of my voice before I lost it, and I barely recognize it anymore.
But by summer I want to READ to Eli. I want to SING with Eli. I want to TALK to my husband and kids. I want to have enough breath to start walking up and down the sidewalk in front of my house, with my walker of course, and get my muscles back.
I want to make my own phone calls.
If you've made it this far, thank you. This is a lot for me. For my accountability. If it helps you, as my MO roots say, "that's gravy".
More to come. Here we go......
Judy
Tuesday, May 24, 2016
Where We Got the Bowls
I should have seen it coming. We were very familiar with speech therapists already. His older brother has a metabolic disorder that left in its wake a pretty nasty case of low muscle tone. Having weak muscles in your jaw, lips and tongue make it difficult to form words correctly. We spent years hanging out in the speech therapist's office, working on strengthening the muscles around his mouth.
By the time Sam was born his big brother was speaking well and on the fast track to normal speech.
I assumed I knew what to look for in Sam's speech development, since his brother's speech therapist had become one of my best friends in Missouri. (We did spend a lot of time together, more than I spent with any 'regular' friends and we were both passionate about my sweet boy. There's nothing more bonding than someone loving your kid almost as much as you do)
So when we made the big move to D.C. and Sam continued to be an easy going toddler, I was not concerned. I was watching for 'mushy speech' and I was not hearing it. I was watching for mispronounced words and I was not hearing any.
That was the problem. I wasn't hearing anything. My baby was mute. Not exactly mute. He made sounds. But nothing close to language.
It was when he had passed his second birthday and I realized he had never said the word 'NO!" that I became alarmed. What two year old (or eighteen month old, for that matter?) has not pounded his fist on the highchair tray and yelled NO! in the middle of dinner?
I should have noticed it earlier. But I was watching for zebras, and antelopes showed up. Plus we had just packed up our four young children, all born in Missouri, and moved them from the only city they had ever lived in, plunking them down in the middle of the metropolis of Washington D.C. (just months after 9/11, mind you.)
There was a lot of unpacking and signing up for schools, and figuring out the metro lines stuff going on. The fact that Sam was quiet was not noticed because he was...well...quiet. The squeaky wheel thing and all that.
So suddenly I noticed and found the box with the address book in it so I could call best friend speech therapist back in Missouri. She confirmed my concerns and advised I get on the case immediately.
Thus began Sam's journey with speech therapists. But this time we were not working on blowing bubbles and cotton balls to get stronger lips. We were working on finding sounds to make into words.
We had been doing baby signs with him and they became his life saver. He could express, through basic signs, what he wanted. I was introduced to the amazing Signing Time videos. They helped our whole family, including grandparents, understand how to communicate with our youngest child.
But part of the problem with having no speech as a one, then two, then three year old, is not being able to express how you feel. He didn't bombard me with constant questions through the grocery store, like his siblings had done. There was no discussing his favorite desires for Christmas that year. He didn't have the opportunity to question how the sky was made or why fruit loops don’t grow on trees. The basic needs were communicated but I missed knowing what my boy was thinking.
Then one day, after months and months of speech therapy, the language started to come. Slowly, slowly we built up words into sentences and Sam started to realize he could talk. He could ask questions and state his feelings. And it was fun to see what he had been carrying around inside that head all those quiet months.
One of my favorite moments came when he had become a tall, confident three-year-old. He sidled up to the counter and asked for a bowl of breakfast cereal. "Me want cee-yal, mama".
And as I poured out the frosted flakes and slopped on the milk my sweet boy looked up to me and said, oh so seriously, "Where we get dees bowls, mama?"
All those months of silence and my boy had been wondering where I'd gotten the bowls.
It makes me wonder what else he had been wondering, that he never got to ask.
I met with his school speech therapist today and he is right on track. He will still receive services through the summer and then into second grade, but most people who meet him would never know he ever struggled with finding language. We feel blessed to have been able to shower him with the best specialists in every city we've lived in.
Sometimes I think back to Sam's preschool days and wonder what treasures we missed. Sam is a very creative kid and I wonder what questions he had about the world around him that he could never ask because language was foreign to him. What magical profound thoughts circled through his preschooler brain and had no way of getting out? I will never know the answers to these questions but I am thankful anyway. So thankful that he finally did master our language and is able to fit right in to his second-grade class today. Thankful that he had great teachers along the way who brought out the best in him.
Changing in the Years
Tuesday, May 17, 2016
At the End of a Stack of Home Movies
I've been leading a double life lately. Most of the time I go about the regular business that makes up my world these days. On Mondays, I watch a friend's baby for a few hours. On Tuesdays, I write. On Wednesdays and Thursdays, you'll find me at the Rec Center, greeting people who come through the doors. On Fridays, I get the house and pantry in order so we can spend the weekend playing.
But ever since a couple of small brown boxes showed up on my doorstep about two weeks ago, there have been stretches of time that I've been transported back a couple of decades.
About six months ago I caught a great Groupon offer for transferring old media to DVD. I have moved tubs of Super 8 movie cassettes from house to house through the years and it's been on my perpetual list to get them changed over to a format I could actually look at. Most of the home movies we filmed between 1992 and 2004 have never been looked at. In 2004 we bought our first digital camera and started taking home movies on that. So the Super8 cassettes (and movie camera) just sat in tubs.
The coupon was just the kick I needed to get that project moving. I separated my 80 movie cassettes into two boxes, so if by chance the company lost or ruined a batch, it would only be half of my collection. A few months later they showed back up at my house, along with 40 DVDs, full of their contents.
I went through all of the footage for several reasons. One was because I really didn't remember what we had taped as the kids grew up. I didn't know what would be on those tapes, beyond the vague labels like 'Christmas 2000'.
Another reason - I've thought about my mom a lot lately, as my nest is emptying, and I am nearing the age she was when she died. I wondered how much footage I had, or didn't have, of her. I have pictures I show my children, of a grandma they really missed out on knowing. But having them see her moving around, hearing her voice cooing at my older two when they were babies (the only time she got with my children) would help them know her in a new way. I've walked around all these years hoping, but not really knowing, that I actually had caught some of her on video.
And of course, there is the nostalgia that comes with having kids who are almost grown. The thinking back to when they were little, and the house was chaotic in a different way. The wondering where the years went. The wanting to see a glimpse into that world, and be reminded that the days indeed were long, even if the years were short.
What I actually found on those 40 DVDs (most of them 30 min long, to put things in perspective) was not what I had imagined.
The overwhelming feeling I had, as I chipped away at them, an hour here and an hour there, was that I really loved being their mom. I loved being home with them. As much as we scrimped and saved so that I didn't have to go back to work when they were little, it was all worth it. Our world was calm and mostly full of fun.
We spent a lot of time dancing to music, whether it be the Jungle Book soundtrack, or the Elephant Show on television. Barney was a big part of our life, as I'd remembered, but there was so little time spent in front of a television. Computers were new and fairly crude, so having 'kids electronics' meant having a play keyboard or a junior version of a CD player.
There was a lot of time spent outside, just hanging around the swingset. Chasing bees in the grass. Pouring water through a pool toy that made wheels spin around, over and over and over. Balancing thin sticks between the rings on the swingset so they could karate chop them down.
As much as Daddy traveled in his job as an archaeologist, he spent a lot of time with them. I have great language samples from them, at several ages, as they shared with him their latest thoughts, connected to him through a land line that connected our phone to another land line in a hotel near his latest dig. There was no face time or texts. It was just a line of little people, waiting for their turn to talk to daddy before it was time for baths and bed.
The times he was home there was wrestling on the living room floor (three of our four are boys). Pitching baseballs and kickballs toward them as they lined up behind a cardboard home plate with a handful of neighbor kids, using our perfectly spaced trees as bases. There were chores like mowing the grass and shoveling the driveway, made more fun (and less productive) by a few little helpers with plastic replicas of his tools.
I loved it all. I loved seeing them wearing clothes I sewed for them, my hobby for several years, as they napped and I did something just for me. I loved the simple things we celebrated, like baby brother's six-month birthday, mainly because Daddy had brought home chocolate cupcakes he'd found on sale and it coincided with someone's half birthday. I loved the secrets they thought they were whispering to me 'behind the camera' as I taped their siblings.
"Mama, when will it be my turn?"
I loved how they loved each other.Sure, I remember the fights they had, and the times they didn't get along, but what I see a lot in that footage is four kids who genuinely liked being together. A big sister who couldn't walk past her baby brother without touching his head and usually leaning down to kiss it. A big brother who didn't have to be asked, and rushed to a little brother's aid just because he noticed him struggling. They way they danced together, played together, shared plastic tools while Daddy fixed something. I loved every second of it.
And I can't forget the way it made me feel about my spouse, watching those memories from so long ago. To remember how much I loved being home with our kids reminded me how hard he worked to make that happen. Before we even married, we agreed that we'd both be committed to the same life priorities when it came to our kids. Even when it was hard, he never flinched. He worked hard all day, all week, then came home and consciously gave me a break, fully understanding how tiresome the 24/7-ness of being a stay at home mom can be.
Seeing how expertly he did his part in being involved in our kids' lives reminds me how lucky I am, and always have been. It's easy to be annoyed at a spouse who you've been attached to for over a quarter century. Some of the old annoying habits can creep up on you. But after watching this footage, I can't ignore all of his great qualities. It makes me want to call each of my kids and remind them how important picking the right spouse can be.
I love the variety of houses and experiences we captured on those tapes. They begin in the early 1990s, when our oldest two were babies and we lived in a tiny one bedroom duplex while Daddy was in grad school. There are long stretches of a six-month propped in a walker and his 18-month-old big sister pushing her plastic baby stroller around the cracked driveway. We were just hanging out together, with nothing but time, waiting for Daddy to come home so we could all squeal our welcome.
Then there were years in several houses in Jefferson City, when Daddy worked for the MO Highway Department. A couple of little houses within walking distance to his work (so we could have our one vehicle during the day to run errands). And a cute barn shaped house that was perfect for that stage of our life, where so many great memories were made.
I have great footage of my Dad's house, before and after we lost my Mom. Running around his big backyard in the country and watching toddlers dancing to music in his living room, on the shag rug carpeting from my childhood.
Then come the shots of the move to DC, when Daddy got his job with the Federal Highway Department. We spent a lot of time visiting the City on weekends, but all of our home movies in that year are of the time we spent in the little rental house we shouldn't have found, but lucked into. The games in the woods behind the house. The days and days of snow play when the area was hit with a record snowstorm that gave us 10 days in a row of snow days.
Grandparents and friends who came to visit us show up on those tapes. Dancing around the living room with great friends from New Hampshire, and opening presents at Christmas with Daddy's parents. These are all such solid reminders of how loved we are. So perfectly and completely loved. No matter where we lived.
I actually have footage of the kids and Daddy unloading one of our two minivans, as we moved into our great big Utah house, finally able to settle down for a few years. My seven year old asking where to put the boxes he's carrying in from the garage, and I say, "Mommy and Daddy's room", and he says, "Where's that?"
A stark reminder that there was a day that the Utah house was new and the lifetime of experiences we collected there had not happened.
Then, a few months later, some footage that surprised me. In the weeks after my amputation surgery, I spent a lot of time in bed, healing. Daddy, and grandparents, helped out with kids. Then I was up on crutches, hopping through the day's chores. But while I was spending those long weeks in bed, I had entertainment.
I remember playing a lot of board games in those weeks. I remember finally putting together their baby books. And I remember reading lots of picture books to them. But what I did not remember were the impromptu shows that were put on at the end of my king sized bed. At one point you can even see the tip of my wrapped stump in the foreground, as I taped my newly 3-year-old dancing and playing his toy guitar. There are almost two DVDS full of the shenanigans that went on in our master bedroom, while I waited for a leg stump to heal. These shots alone made me glad I'd made the time to dive into the footage.
And, in case you were wondering, yes, there was ample footage of my mom. And it didn't make me sob, as I had assumed it would.
The first clips I found surprised me because as much as I thought I'd never forget her voice, it was different than I remembered. In fact, she sounded exactly like me. My 15-year-old 'baby' walked through the room when her voice was on the audio of the footage I was watching. He didn't believe me, that it was my mom. He agreed I sound exactly like her. Which kind of makes up for the fact her voice was not how I had locked it into my memory. Instead, I carry it around with me.
I have scenes where she's holding my two oldest, as newborns. She is cooing over them and fussing over them, exactly as I'd remembered. And there is a lot of audio of her voice,of her stories and comments. We didn't have a clue that she'd be gone soon, so no one made the effort to make sure we were taping her. Our goal was to tape the babies. But in the background, you can hear her. The way she talked and the way she thought is as important to me as the visual.
It's burned into my memory that she died at age 50. It seemed so young then, and seems even younger now that I'm almost there myself. I remembered celebrating her 50th birthday, and the way she didnt want that number to make her feel old. But until this week I didn't realize I had actual video footage of that party.
I have her saying, to her children and grandchildren gathered around the table, that she is thankful to still be country dancing, and thankful to have healthy kids and grandkids. Even when she's handed the traditional black balloons, the smile shows on her face and in her voice. At one point my baby Michael sits on her lap. It's a shot I assumed we'd treasure in years to come because of how quickly Michael had grown. Not because it was one of the last videos taken of her before she was gone.
But instead of being overwhelmed with saddness, as I'd feared for so long, I was once again overcome with thankfulness.
She was a huge influence in my life. She made her mark on so many lives. There is no doubt I miss her, every day. But life has gone on. And my goal now is that these kids she didnt get to see grow up know her a little bit better. The still pictures were not enough. Now I have video and audio to share with them. They know about this woman who made me who I am, as a mom to them. These home movies help save her memory, as only home movies can.




















